Friday, October 17, 2008
Hyperbaric Oxygen Therapy
I fully believe things come to you when you are ready. I had heard about hbo therapy (hyperbaric oxygen) about two or three years ago. At that time I was overwhelmed with all the other biomedical things we were doing and working with the school, so I didn't really do a lot of looking into it. Recently I started to feel like there was something out there that was "calling" me. After ready Jenny McCarthy's latest book "Mother Warriors" I realized what it was. Several of the parents in her book mentioned HBO therapy and how much it helped their kids. I knew I needed to find out more about why it works and what the protocol entailed.
I know in my gut that this is right for Connor. There is a definite protocol in place and the safety rate is outstanding. So I started calling local HBOT centers. I heard from all of them that autism is not something they treat and that no one in Colorado would risk treating my son because it would be considered "off label". When I finally talked with the last HBOT center that I had a number for in Denver, a technician heard my sh peel and then, as all the other centers had done, he denied my plea. I then kinda lost my cool and began to rant about the ridiculousness of the bureaucracy of these clinics and how my son could be really helped but because of these stupid rules he wont have the chance. He then asked if he could put me on hold, so I figured he was just dishing me off to someone else, but instead he got back on the phone and began to whisper. He said if it were him he would find a "stand alone" center that was not connected to a hospital. He warned to find a reputable clinic that had trained personnel and not be fooled by people pawning off their equipment. He talked about the risks of renting one and that out of state would probably be my best option. It was a relief to actually have someone talk (or in this case whisper) to me fairly openly instead of just another "no". I felt reinvigorated that this was the right path for me and for Connor.
I found a clinic in Denver (about two hours away) that treats autistic children. It is a stand alone clinic, meaning it isn't connected to a hospital. The problem with this particular clinic is that they know they have a monopoly for desperate parents like me, therefore they charge three times what they should charge. I made it clear to them that I would not be paying that price and they said, "Good luck out of state then".
I had almost given up hope that I would find a clinic that I could afford to go to and that would work with us "off-label" people.
I found an amazing clinic in the LA area that have some pretty amazing and famous autism professionals working at the clinic. One of the doctors is Dr. Kartzinel, Jenny McCarthy's son Evan's doctor. This clinic looks amazing and the price is the lowest of all I have found. Please look into it if you have the chance. www.californiahyperbarics.com
In our case we are actually going to go to a clinic in Fresno, California. The reason I decided to do this is because I have lots of family and friends in Fresno and this clinic looks wonderful. The owners opened this clinic because of their own journey with their autistic child. They traveled all around California, and the country doing biomedical treatments for him. They wanted to spare other parents and children the financial hardship of having to travel all around the country to get hbot and other biomedical treatments. This clinic is also associated with the Ronald McDonald house. Please check out this clinic also if you are in the area. HOPE Hyperbaric Treatment Center
We are planning on trying HBOT this spring break. I don't want Connor to miss too much school and we will be there three weeks. The protocol is forty sessions with most people seeing some improvement around twenty sessions. Most clinics will do two sessions a day with four hours separation between sessions. Please look into this treatment later in your biomedical protocols. I think things like this do so much more after the gut and "bugs" are addressed. In fact, the doctor we use, Dr. Amy Yasko advises doing it in her stage three. Basically after addressing methylation and gut issues.
More info: Hyperbaric Healing Institute
Hyperbaric Oxygen Therapy (HBOT) is a method of administering pure oxygen at greater than atmospheric pressure to a patient in order to improve or correct conditions. By providing pure oxygen in a pressurized chamber we are able to deliver 10-15 times more oxygen then if delivered at sea level or at normal atmospheric levels. Some of the effects this has are to promote the growth of new blood vessels, decreases swelling and inflammation, deactivates toxins, increase the body’s ability to fight infections, clears out toxins and metabolic waste products, and improve the rate of healing. HBOT should be used to compliment conventional therapies and treatments.
Wish us luck...
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5 comments:
Wow, I'm glad you were able to find someone that you're comfortable with and that was willing to help you with Connor. I have heard of this before and one of my Mother-in-Laws friends, grandchild goes to a place like this. They absolutely love it and I'm sure you guys will too! Good Luck and keep us updated!!!
we have talked many times about things coming to us when we are ready to receive them. this sounds like a wonderful opportunity for connor and i am sure you will see amazing results. you are a fighter for sure!
As it turns out Jenny McCarthy is slowly killing herself and her son by using Oxygen Therapy everyday:
http://www.sciencedaily.com/releases/2010/10/101005104335.htm?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed:+sciencedaily+(ScienceDaily:+Latest+Science+News)&utm_content=Google+International
I would not expect her to understand this but perhaps others that can explain it to her that understand science.
I am not sure about Jenny McCarthy and all she is doing, BUT I do believe in the science of HBOT. I think there is enough anecdotal evidence to suggest the benefits of HBOT. It wasn't right for us because unfortunately my son has a strep issue that is ongoing. Strep loves oxygen and therefore the HBOT fed his strep. I don't want to discourage parents who would like to learn more about this type of therapy however. With all that we do, it is about research, moderation and "do no harm".
If still interested in local HBOT we have opened 2 clinics one in the springs and one in denver directly due to the lack of availability to "off-lable" indications. Feel free to call 303-944-0316
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